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The HelpSarah.org Charitable Trust is a Tax Deductible Trust endorsed by the Australian Tax Office. Our goal is to raise funds for Sarah's therapy and equipment.
What is Sarah’s Condition?
Sarah was born in 2007 with a rare genetic disorder. As a result, Sarah has severe hypotonia and cannot walk, speak or sit herself up. Sarah also has severe developmental disabilities in many areas, suffers from sleep apnea and epilepsy.
Sarah has a mutation within a gene called PURA. The condition is known as PURA syndrome.
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Sarah's Story
Watch a video to learn more about Sarah.
PURA Foundation Australia
To find out more about Sarah's condition PURA syndrome and read about the research work being completed by Sarah's mum and dad.
PURA FOUNDATION AUSTRALIA
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